web analytics
August 1, 2015 / 16 Av, 5775
At a Glance
News & Views
Sponsored Post


Family Starts Nonprofit for Cure for Cause of Deaf-Blindness in Jews

Usher Syndrome is a genetic disease that is the leading cause of deaf-blindness in the world, particularly affecting Ashkenazi Jews, 2% of whom carry the recessive gene for type 1f. Type 1 is the most severe. Those affected are born profoundly deaf with impaired balance; then, retinitis pigmentosa causes them to gradually lose their vision, first with night blindness in early childhood, followed by increasingly narrowing tunnel vision, progressing eventually to total blindness.

Much of the research into a cure for retinitis pigmentosa is specific to a particular mutation. The Chaikof family of Newton, Massachusetts, learned that while there is research funding for many of the other subtypes and even a clinical trial for one type, currently no research or funding for type 1f exists. One of the major reasons is the lack of an animal model, which is necessary for implementing clinical trials for those with type 1f.

Elliot Chaikof, Surgeon-in-Chief at Boston’s Beth Israel Deaconess Medical Center, and his wife Melissa founded Vision for a Cure because two of their three children, Rachel and Jessica, are affected by the disease. While the girls hear and speak well thanks to cochlear implants, saving their daughters’ vision is a race against time, with the window narrowing as more time passes without an effective treatment.

The initial goal of the foundation is to fund the creation of an effective mouse model for Usher Syndrome type 1f. Subsequently, funding research for a cure using this mouse model will follow. It is imperative that we fund research to cure Usher Syndrome type 1f so that all Jewish children will have the opportunity to see the future.

About the Author: JewishPress.com brings you the latest in Jewish news from around the world. Stay up to date by following up on Facebook and Twitter. Do you have something noteworthy to report? Submit your news story to us here.


If you don't see your comment after publishing it, refresh the page.

Our comments section is intended for meaningful responses and debates in a civilized manner. We ask that you respect the fact that we are a religious Jewish website and avoid inappropriate language at all cost.

If you promote any foreign religions, gods or messiahs, lies about Israel, anti-Semitism, or advocate violence (except against terrorists), your permission to comment may be revoked.

No Responses to “Family Starts Nonprofit for Cure for Cause of Deaf-Blindness in Jews”

Comments are closed.

Current Top Story
Matt Lee of the Associated Press at the State Department press briefing.
ObameDeal Exposed: It’s not ‘Secret’ from Congress but not in Writing
Latest News Stories

There were no injuries, but the bus was badly damaged.

Matt Lee of the Associated Press at the State Department press briefing.

State Dept. claims Congress is “looped in,” but IAEA head refuse to testify at Senate hearings.

They are throwing rocks and blocks at the drivers as they drive by.

“Families should not be stuck paying hidden fees, or buying ‘premium’ seats, simply because they wish to be seated together on crowded flights.”

Arabs threw firebombs and stones at Jewish people, homes and cars all week long, yet the mainstream media missed most of the reports.

The IDF and police are combing Judea and Samaria to search and arrest the attackers.

“Yesha” and Binyamin Regional Council leaders said the attack “is not the path of Jews in Judea and Samaria.”

Saudi Arabia may buy $5.4 billion worth of PAC-3 missiles as part of an effort by the Obama to soothe Riyadh’s anger over the nuclear agreement with Iran. The State Dept. approved the Lockheed missile sale, which also would be another plum for the military-industrial complex. Lockheed stated, “Lockheed Martin is supporting the US government […]

Prime Minister Binyamin Netanyahu issued a statement after this mornings’ arson-murder, apparently by  price-tag terrorists, near Shechem (Nablus): I am shocked over this reprehensible and horrific act. This is an act of terrorism in every respect. The State of Israel takes a strong line against terrorism regardless of who the perpetrators are. I have ordered […]

Thousands of security forces have been deployed to the Temple Mount. Mother and brother of baby are in critical condition.

The initial investigation indicates that Price Tag vandals have now graduated to murder.

California Democratic Congressman will vote against Iran deal because it fails to stop Iran from becoming a nuclear threshold state.

Hamas said that the unity government’s reshuffle was “unconstitutional and outside consensus.”

Jewish community leaders argued these “stolpersteine” — German for stumbling blocks — were an inappropriate form of remembrance because people would step on them.

More Articles from Jewish Press News Briefs

Arabs threw firebombs and stones at Jewish people, homes and cars all week long, yet the mainstream media missed most of the reports.

Prime Minister Binyamin Netanyahu issued a statement after this mornings’ arson-murder, apparently by  price-tag terrorists, near Shechem (Nablus): I am shocked over this reprehensible and horrific act. This is an act of terrorism in every respect. The State of Israel takes a strong line against terrorism regardless of who the perpetrators are. I have ordered […]

Canada is buying Israeli Iron Dome radar that is able to detect rockets, artillery and mortars at long ranges, and can simultaneously engage a large number of targets. Ottawa’s Dept. of National Defense awarded the contract to ELTA Systems, a subsidiary of Israel Aerospace Industries Ltd. (IAI), and Rheinmetall-Canada. The radar system offers exceptional detection […]

At least two reliable sources reported that Mullah Omar, one of the world’s most wanted terrorists, has died.

Gaddafi wasn’t in the court, as he is currently being held captive by one of the former rebel groups in Zintan.

Printed from: http://www.jewishpress.com/news/breaking-news/family-starts-nonprofit-for-cure-for-cause-of-deaf-blindness-in-jews/2014/03/04/

Scan this QR code to visit this page online: