Chillul Tefila Bifarhesia, as well as halachicly challenged verbiage and dress, are external manifestations of a critical lack of personal yiras shomayim which has lethal consequences.
Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection. While Ezra still runs and plays like other toddlers, he must get IV Immunoglobulin treatments every few weeks, take prophylactic antibiotics, and use extra caution against germs in public places. Despite these treatments and precautions, serious complications still arise. The only cure for Ezra is a stem cell or bone marrow transplant.
Robin and Evan Fineman, Ezra’s parents, have been working with the bone marrow registry, Gift of Life, since October 2010 in their quest to find Ezra’s bone marrow donor. Gift of Life, headquartered in Boca Raton, Florida, is headed by founder Jay Feinberg, who recently celebrated the 16th anniversary of his own bone marrow transplant. Gift of Life focuses on patients in the Jewish community, as it would be more likely for them to find a match within the Jewish population. The search for Ezra’s match has gone global, with donor drives being held across the United States from Phoenix to New York, as well as Bialystok and Warsaw in Poland. The cost to process each potential donor’s sample, taken by a simple swab of the cheek, is $54. While each potential donor is encouraged to fund their own test, many people can’t afford to, and over 13,000 samples are still waiting to be tested due to lack of funding. While financial donations to Gift of Life are encouraged, the Finemans – who have raised over $100,000 for testing – are also trying to target their drives as much as possible to increase the chance of finding Ezra’s match.
Feinberg has personally been analyzing test results to see if they are on the right track. “Ezra’s DNA has an anomaly, a rare genetic crossover, that is making his search especially challenging,” says Feinberg. His antigens or markers are matching most closely with people of Eastern European descent, particularly those of Polish and Hungarian ancestry. “Robin has been working with a genealogist to discover Ezra’s ancestors’ cities of origin. The Holocaust has a huge impact until this very day on patients like Ezra. We are missing all of the bloodlines of people that would have been here today to donate,” explains Feinberg.
“It was amazing that over 200 people showed up for the drive in Bialystok,” Robin said. “With the language barrier, we weren’t even sure it was going to happen.” The Finemans, while still waiting for Ezra’s donor, are thrilled that nine potential donors for other patients have been found, and that one transplant has been performed so far through efforts on Ezra’s behalf.
Joining the bone marrow registry and donating is actually easier today than when Jay Feinberg was looking for his perfect match. For more information about having a drive in your area, contact Robin Fineman at Help4Ezra@gmail.com, or go to www.giftoflife.org/help4ezra, to order or sponsor a test kit. You can also visit Help4Ezra on Facebook. The actual donation procedure is much less invasive than it used to be.
Feinberg stresses the importance of all eligible participants joining the registry. “People ask, ‘what are the chances that I’ll be a match?’ but that can’t be further from the truth. They can be the one.” Feinberg should know, as 50,000 people were tested during his search for a donor. His perfect match was the 50,000th person to register at the very last drive to be held on his behalf.
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Dear Dr. Yael:
Do you really believe that the Internet is the reason why the divorce rate is so high among young couples? This may be so in some cases, but what about the fact that many singles are pressured to get married at a young age despite not having any idea what they are looking for in a mate? And add to that the fact that many are pressured to make a decision about marriage after dating for a very short period of time.
From the moment they stand under the chuppah, newlyweds have two years to enjoy the special bliss that new love brings. This new finding, reported by the New York Times, is based on a study undertaken by American and European researchers. 1,761 people who got married and stayed married over 15 years were followed. The research shows that after two years the couples moved into a more companionable state in their relationships.
Shel Silverstein’s 1974 poem “Where The Sidewalk Ends” is intended to paint a magical picture of a world of peace and serenity far away from the “black and dark streets.” At the time, perhaps the end of the sidewalk was a place that was “measured and slow.” Today, however, for many parents, where the sidewalk ends can feel like a scary place.
The next chapter of the award-winning novel.
Florida is famous for sparkling water. We have the beautiful Atlantic Ocean and Gulf of Mexico surrounding our coast. We have bays, lakes, canals and, of course, an incredible abundance of swimming pools in homes, resorts, apartment complexes and city parks.
The buzz is back as Camp Gan Israel Florida Overnight gears up for another fantastic summer, CGI Florida style. What makes CGI Florida so different from all the other overnight camps? It’s all in the details.
Leah Katz, a TeenZone camper at Oorah’s TheZone summer camp and an 11th grader at Midwood High School, read her winning essay about how TheZone changed her views on Judaism at the Jewish Heritage Awards Ceremony held at Brooklyn District Attorney Charles Hynes’s office in April. The purpose of the Jewish Heritage Essay Contest is to acquaint public school students with Jewish history and customs and to help foster a deeper understanding of Jewish culture. The contest is open to students of all ethnic and religious backgrounds. Leah’s essay is reproduced in full below.
Moshe Sharett, the head of the Jewish Agency’s Political Department, visited Egypt in 1945. In Cairo he met a most remarkable young woman, a beautiful journalist who was the darling of Egyptian high society – from high-ranking military brass, to culture icons and Muslim sheikhs, to the court of King Faruk.
The two proceeded to talk about everyday things and surprisingly her mother-in-law did not find anything else to criticize. This occurred a few more times, with my client changing the topic every time by complimenting her mother-in-law or mentioning something positive about her.
There is always a lot of confusion surrounding sensory processing disorder – mainly because there are many different diagnoses that fall under the catch-all phrase sensory processing disorder (SPD). Among them are three specific subcategories:
The doctor had warned us that even if we did everything right and followed the protocol after the follicle was of the right size, there was no guarantee of success. Fertilization still had to occur, and just like couples do not necessarily become pregnant every month, we had no way to know if we were actually expecting for two full weeks.
The next chapter of the award-winning novel.
A Jewish educator anywhere in the world can now seek the accumulated knowledge available at the The Azrieli Graduate School of Jewish Education and Administration. With the introduction this spring of a degree that can be completed online, geography is no longer a bar to attendance in an Azrieli Master’s program.
Having twins used to be a novelty. Now, if you think that you are seeing double everywhere you go, it is not your imagination. The National Center for Health Statistics (NCHS), under the auspices of the Centers for Disease Control and Prevention (CDC), published a study last month noting the sharp increase in twin births over the past three decades.
Deliberating over terminating a pregnancy is a struggle Rachel* never thought would face her. Life in Northern Israel with her husband and daughter was great until a business they invested in brought a huge financial loss and left them in debt.
Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection.
Ohel is well known in the New York area for the foster care programming it has been providing for over 40 years, along with its mental health services to individuals and families, and its services to the developmentally disabled through its Bais Ezra programs. Ohel also provides substantial training to professionals, and workshops and seminars to the community at large.
Printed from: http://www.jewishpress.com/sections/magazine/potpourri/looking-for-the-perfect-match/2011/08/17/
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