web analytics
July 1, 2015 / 14 Tammuz, 5775
At a Glance
Sections
Sponsored Post


Looking For The Perfect Match


Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection. While Ezra still runs and plays like other toddlers, he must get IV Immunoglobulin treatments every few weeks, take prophylactic antibiotics, and use extra caution against germs in public places. Despite these treatments and precautions, serious complications still arise. The only cure for Ezra is a stem cell or bone marrow transplant.

Robin and Evan Fineman, Ezra’s parents, have been working with the bone marrow registry, Gift of Life, since October 2010 in their quest to find Ezra’s bone marrow donor. Gift of Life, headquartered in Boca Raton, Florida, is headed by founder Jay Feinberg, who recently celebrated the 16th anniversary of his own bone marrow transplant. Gift of Life focuses on patients in the Jewish community, as it would be more likely for them to find a match within the Jewish population. The search for Ezra’s match has gone global, with donor drives being held across the United States from Phoenix to New York, as well as Bialystok and Warsaw in Poland. The cost to process each potential donor’s sample, taken by a simple swab of the cheek, is $54. While each potential donor is encouraged to fund their own test, many people can’t afford to, and over 13,000 samples are still waiting to be tested due to lack of funding. While financial donations to Gift of Life are encouraged, the Finemans – who have raised over $100,000 for testing – are also trying to target their drives as much as possible to increase the chance of finding Ezra’s match.

Feinberg has personally been analyzing test results to see if they are on the right track. “Ezra’s DNA has an anomaly, a rare genetic crossover, that is making his search especially challenging,” says Feinberg. His antigens or markers are matching most closely with people of Eastern European descent, particularly those of Polish and Hungarian ancestry. “Robin has been working with a genealogist to discover Ezra’s ancestors’ cities of origin. The Holocaust has a huge impact until this very day on patients like Ezra. We are missing all of the bloodlines of people that would have been here today to donate,” explains Feinberg.

“It was amazing that over 200 people showed up for the drive in Bialystok,” Robin said. “With the language barrier, we weren’t even sure it was going to happen.” The Finemans, while still waiting for Ezra’s donor, are thrilled that nine potential donors for other patients have been found, and that one transplant has been performed so far through efforts on Ezra’s behalf.

Joining the bone marrow registry and donating is actually easier today than when Jay Feinberg was looking for his perfect match.  For more information about having a drive in your area, contact Robin Fineman at Help4Ezra@gmail.com, or go to www.giftoflife.org/help4ezra, to order or sponsor a test kit. You can also visit Help4Ezra on Facebook. The actual donation procedure is much less invasive than it used to be.

Feinberg stresses the importance of all eligible participants joining the registry. “People ask, ‘what are the chances that I’ll be a match?’ but that can’t be further from the truth. They can be the one.” Feinberg should know, as 50,000 people were tested during his search for a donor. His perfect match was the 50,000th person to register at the very last drive to be held on his behalf.

About the Author:


If you don't see your comment after publishing it, refresh the page.

Our comments section is intended for meaningful responses and debates in a civilized manner. We ask that you respect the fact that we are a religious Jewish website and avoid inappropriate language at all cost.

If you promote any foreign religions, gods or messiahs, lies about Israel, anti-Semitism, or advocate violence (except against terrorists), your permission to comment may be revoked.

No Responses to “Looking For The Perfect Match”

Comments are closed.

Current Top Story
Senator Chuck Schumer (D-NY)
Pro-Israel Group: Tell Chuck Schumer Not to Cave [video]
Latest Sections Stories

Anna Henriques, who hopes to one day head back to Jamaica, says, “Rabbi Raskin must be willing to respect what exists in Jamaica. The way to the future is to gently bring in the traditions of the past and at the same time embrace the idiosyncrasies of the Jamaican people.”

Food-Talk---Eller-logo

The Silver Platter has it all: gorgeous photography, oodles of useful tips and, more importantly, incredible recipes that you will find yourself making again and again.

Emmer-052915-History

It may be that seeking to connect with the past is rooted in the impermanence and impersonality of modern life.

It is very hard to build a healthy marriage when you do not have good role models.

My best book is one that hasn’t been published yet.

We tend to justify and idealize this division with pride attributing these tendencies as demonstrating a higher level of kedushah.

Everyone in the kehilla can get involved, she added, and mothers can network with each other.

On her first ever trip to Israel last week, popular radio talk-show personality and clinical psychologist Dr. Joy Browne, whose spirited broadcasts regularly attract millions of listeners across North America, paid a visit to OneFamily headquarters in Jerusalem in order to learn more about the physical and emotional challenges faced by victims of terror in […]

With the famous Touro Synagogue, a variety of mansions, each with its own distinct personality, as well as the beautiful coast, Rhode Island makes for an excellent vacation spot.

To avoid all this waste and unnecessary anxiety, let’s break the task down step by step and tackle each one at a time.

While there are those who insist they need full-color photos to be truly entranced by a recipe, I suggest you get over that particular requirement because the written word here will draw you in and cause you to salivate as you peruse the recipes scattered throughout The Well-Spiced Life (Israel Book Shop).

For those who couldn’t go off base, a personal parcel was priceless in its ability to convey a feeling of home.

With the danger of being discovered always a possibility, the partisans not only moved around in the forest, but also eliminated any collaborators.

More Articles from Amy A. Dubitsky
Gluten-Free-Nov-2013

More often in recent years, people are gluten-intolerant or are choosing to eat a gluten-free diet. This may feel like a challenge to a hostess, but if you know in advance there are some simple ways to accommodate your guests’ special needs.

Dr. David Schnall, dean of the Azrieli school.

A Jewish educator anywhere in the world can now seek the accumulated knowledge available at the The Azrieli Graduate School of Jewish Education and Administration. With the introduction this spring of a degree that can be completed online, geography is no longer a bar to attendance in an Azrieli Master’s program.

Having twins used to be a novelty. Now, if you think that you are seeing double everywhere you go, it is not your imagination. The National Center for Health Statistics (NCHS), under the auspices of the Centers for Disease Control and Prevention (CDC), published a study last month noting the sharp increase in twin births over the past three decades.

Deliberating over terminating a pregnancy is a struggle Rachel* never thought would face her. Life in Northern Israel with her husband and daughter was great until a business they invested in brought a huge financial loss and left them in debt.

Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection.

Ohel is well known in the New York area for the foster care programming it has been providing for over 40 years, along with its mental health services to individuals and families, and its services to the developmentally disabled through its Bais Ezra programs. Ohel also provides substantial training to professionals, and workshops and seminars to the community at large.

While no one can ever guarantee great weather, I know that just the other day, on December 29th, I was sitting outside a caf?, sipping my favorite iced drink – without a jacket.

Printed from: http://www.jewishpress.com/sections/magazine/potpourri/looking-for-the-perfect-match/2011/08/17/

Scan this QR code to visit this page online: