Chillul Tefila Bifarhesia, as well as halachicly challenged verbiage and dress, are external manifestations of a critical lack of personal yiras shomayim which has lethal consequences.
One question that comes up repeatedly when talking about the lives of well spouses is, “Why do they stay in the marriage?” Another question is, “How could they leave someone so sick?” Before I explore both sides of the issue I think it is important to review what the life of a well spouse consists of. In this article I intend for you to follow a woman whose husband has been chronically ill for many years as she goes through her day.
It is 6 a.m. Amy is in a very deep sleep when she hears the doorbell. She quickly jumps out of bed, throws on a robe and tichel and opens the door for the orderly. She apologizes to him for making him wait, while she gets her clothes out of the bedroom she shares with her spouse, so the orderly can tend to her husband and get him ready for work. She desperately wants a shower but now must wait till the orderly is finished getting her husband ready. This means he needs access to their only bathroom and she must keep it clear.
He is a good orderly and she doesn’t want to lose him. He is kind to her husband, although often grouchy to her when she oversleeps and he has to wait. He has other clients and a schedule to keep. They were lucky to get his 6 to 7 a.m. slot and she doesn’t want to lose it. If he quits, she will have to go through the difficulty of getting her husband up and dressed without help until another orderly can replace him. That could take weeks.
Her husband is very particular about who helps him. It is understandable. If she were in his shoes she would be too. So she goes into the other room to prepare for her day. She realizes that she’s forgotten something she needs from the bedroom, but will now have to wait till 7 o’clock to get it when the orderly is finished.
She puts together breakfast and packs her husband’s lunch. They have been very lucky. Her husband has been able to keep his job through the course of the illness. His boss has modified his office at each stage of his deterioration. He raised the office desk, just as Amy as had to put these huge blocks under her tables at home, in order to accommodate the wheelchair, once it was needed.
He gave her husband a private phone, put in a ramp, made the washroom accessible and so much more. These were all the things Amy had to do at home. She often thought how her home now looked and smelled like a hospital, instead of a home. She had to adjust, but his boss did not, bless him.
They certainly needed her husband’s salary to help with the added medical expenses, and working saved her husband. He still felt productive. Amy, on the other hand, felt over-productive as she helped her husband into his winter coat, warmed the car and cleared it of snow and ice, got him into it and began driving him to work.
At least the children were grown. She remembers having to do all this while caring for the children as well. She’d have to force them into the car with their eyes still bleary with sleep, to take the long drive to her husband’s office before dropping them off at school and then racing off to her job. Then, doing the reverse in the afternoon, making supper, helping with homework, getting everyone ready for bed, tucking in the children and then spending the evening helping her husband with the work he took home in order to keep up.
His sharp mind had started to slow down and it took him longer to process the information. Sometimes, she even managed to lie down for a half hour (that was heaven) before the orderly came at 11:30 and she had to vacate the bedroom till he was done, sometime after midnight. Then she could go to sleep.
Hopefully, her husband wouldn’t need anything during the night. Maybe tonight his legs wouldn’t twitch and wake her repeatedly. She was amazed how he was able to sleep through it. If she was lucky she could sleep straight through for the five plus hours until almost 6 a.m., when she’d have to take everything she needed out of the bedroom. If she could give up some sleep and get up early enough, she’d have access to the bathroom until 6.
The weekends were different, No better or worse. The orderly’s hours were the same, but she could grab a nap on the couch if her husband was ok, for a while. That had become less and less frequent of late. Sometimes, if her husband was feeling well enough, she could go out for a walk. She’d try to walk where she would meet no one she knew. If she did meet someone, the conversation was always the same.
“How’s your husband doing?” and “What an amazing man he is to continue working. It must be so difficult for him.” and “Why haven’t you tried….” or “You must read this article about his illness. It will tell you about a new technique you can try.” Praises for him and what felt like condemnation for her. Oh well. Tomorrow was another day.
Tomorrow she had a doctor’s appointment and the doctor was sure to complain that she hadn’t done anything to get her blood pressure down. She hadn’t lost weight. She hadn’t found time or energy to exercise. She accepted that she was a failure, why didn’t everyone else accept it and just leave her alone!
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Leah Katz, a TeenZone camper at Oorah’s TheZone summer camp and an 11th grader at Midwood High School, read her winning essay about how TheZone changed her views on Judaism at the Jewish Heritage Awards Ceremony held at Brooklyn District Attorney Charles Hynes’s office in April. The purpose of the Jewish Heritage Essay Contest is to acquaint public school students with Jewish history and customs and to help foster a deeper understanding of Jewish culture. The contest is open to students of all ethnic and religious backgrounds. Leah’s essay is reproduced in full below.
Moshe Sharett, the head of the Jewish Agency’s Political Department, visited Egypt in 1945. In Cairo he met a most remarkable young woman, a beautiful journalist who was the darling of Egyptian high society – from high-ranking military brass, to culture icons and Muslim sheikhs, to the court of King Faruk.
The two proceeded to talk about everyday things and surprisingly her mother-in-law did not find anything else to criticize. This occurred a few more times, with my client changing the topic every time by complimenting her mother-in-law or mentioning something positive about her.
There is always a lot of confusion surrounding sensory processing disorder – mainly because there are many different diagnoses that fall under the catch-all phrase sensory processing disorder (SPD). Among them are three specific subcategories:
The doctor had warned us that even if we did everything right and followed the protocol after the follicle was of the right size, there was no guarantee of success. Fertilization still had to occur, and just like couples do not necessarily become pregnant every month, we had no way to know if we were actually expecting for two full weeks.
The next chapter of the award-winning novel.
Jewish Press columnist Rebbetzin Esther Jungreis, founder and president of Hineni, the international Torah outreach organization, recently addressed an overflowing audience at the Beth Jacob Congregation of Irvine in southern California. Rebbetzin Jungreis’s address theme, “Making a Good Relationship Magical,” was apropos for the evening’s main mission: raising funds for the Irvine community’s mikveh.
You have probably been planning your marriage since you were about three. Let’s fast-forward to a big milestone– your twenty-fifth wedding anniversary. (Don’t worry, you don’t look a day over twenty one!) Now, would you appreciate your husband buying you a dozen roses that some florist recommended?
As I mentioned in my earlier articles about our family trip to Israel, our night flight went pretty smooth, thanks to my children’s willingness to sleep throughout the flight. I, on the other hand, didn’t sleep a wink and I wasn’t feeling too great by the time we landed. But we were finally in Israel, and just being in the beautifully renovated Ben Gurion airport and hearing all the Hebrew around us was exciting enough.
While all the flowers that grace your Shavuos table will surely be a delight to your eye, these will be a delight for your palette as well. Create them at any level, simple or sophisticated; any way you make them they’re sure to be a sensation.
Welcome back to “You’re Asking Me?” where we attempt to answer questions sent in by people who fortunately have fake names, so they won’t be embarrassed. I don’t know how they got through school, though.
Speechless wonder is the reaction to the beautiful vision seen though the Arch of the Keshet Cave at the Adamit Park in the Galilee. One of the most amazing natural wonders in Eretz Yisrael, the Me’arat Hakeshet — also known as the Rainbow Cave or Arch Cave — can be found up against the Israel-Lebanon border just a few kilometers from Rosh Hanikra and the sparkling blue Mediterranean Sea. It is situated amid the wild scenery on the cliffs of Nachal Betzet and Nachal Namer, on the Adamit Ridge.
When one is blind one learns to use Braille to read. When one cannot walk, a wheelchair gives mobility. Sign language allows a mute person to speak and ocular implants assist in hearing when one is deaf. These are all compensatory strategies that help a person function despite his disability. But compensatory strategies are not just for physical problems. Understanding our psychological weaknesses and setting up our lives to ensure that we are not tempted to repeat our past mistakes, is as necessary as any aid to the disabled.
Well spouses have often discovered that their friends and relatives, despite their closeness to the situation, often don’t realize the tremendous emotional impact living with chronic illness has on the family. With the best intentions, suggestions, ideas and criticism are offered, based on the non-experience of those with healthy families. Even when the good intentioned get a taste of the difficulties, it is sometimes not enough for them to then identify and understand what the family of the chronically ill must face on a constant basis.
Over the past two weeks I have shared letters from a therapist and a well spouse. Both of the letters gave personal insights into the process of losing hope, how we react when that happens and some ways of coping when test scores, diagnosis and just simple repetitive behavior indicate that change for the better is impossible.
I’ve read your last few articles on psycho-neurological testing (Oct.8-22) with interest. As a therapist who has counseled couples dealing with chronic illness, I’d like to give you another perspective.
Your articles on the Neuro-Psychological Testing were right on (October 8-22). My husband underwent testing twice and your articles explained it things exactly the way they were. Besides the test, we also tried therapy.
Very often when we can’t face our big hurts or big loses we focus on the little ones. We can discuss those. We can cry over the small loses, be angry at the smaller hurts even though it may look trite and sound ridiculous to others.
Over the last two weeks we have been discussing one way in which well spouses can determine whether behavior displayed by their ill partners is caused by their illness or is a way they have chosen to act. We have focused on Psycho-Neurological testing, what it can tell us, as well as its pros and cons.
Last week I discussed a question that haunts many well spouses: not knowing if the difficult and often inappropriate behavior frequently displayed by their partners are caused by the disease and therefore not-controllable, or if the behavior is a choice the spouse makes and can therefore be changed. This doubt can be the source of much frustration and many marital disagreements. One way of alleviating this doubt is by having a psycho- neurological work up done. But that path is not so simple.
Printed from: http://www.jewishpress.com/sections/magazine/the-life-of-a-well-spouse/2007/01/17/
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