web analytics
September 1, 2014 / 6 Elul, 5774
At a Glance
Sections
Sponsored Post
Jerusalem Mayor Nir Barkat (L) visits the JewishPress.com booth at The Event. And the Winners of the JewishPress.com Raffle Are…

Congratulations to all the winners of the JewishPress.com raffle at The Event



Jewish Baby With Rare Disease Needs Bone Marrow Transplant

Idan Zablocki

Idan Zablocki

Amanda’s sister Elisabeth says, “I have always admired Amanda’s fortitude and patience, and in the last three months, watching her and Akiva go to the ends of the earth to help Idan, she’s only proven her interminable strength. My sister will never stop fighting, and when she tires, she revives herself by leaning on Akiva. I’ve also seen Amanda in moments of deep sadness, and the strength and happiness she derives from all the well-wishers around the world who have donated to Idan’s fund and written messages of support.”

With much of the press the Zablockis have been afforded focusing on medical and insurance issues, Elisabeth also reminds everyone that at the center of this is Idan, who is in pain much of the time but still retains his joyous and, at times, mischievous nature.

“He likes to dance to music and has long conversations, albeit in a language I don’t quite understand yet, and he can get frustrated when he tries to stand and can’t because he set his expectations too high,” she says. “He makes me laugh with his antics, he’s willing to try any food, and he loves being told a story or sung to. He is only one, but he is a little person who has likes and dislikes, and he is going to have to endure pain no one should ever experience.”

The surgery, which is scheduled for September, requires six month of intensive aftercare and normal childhood vaccinations in Seattle before Idan and his parents can think of returning home.

“We’re a close-knit family, and we feel powerless because there’s little that we can actually do to help,” comments another of Amanda’s sisters, Sabrina. “There’s a hole in our lives because we miss Idan terribly, and he won’t be able to share in our annual Chanukah bash or join us at the Seder table this year because he will be recovering from his surgery. We’re a Jewish home missing an integral part of our family. The words of Rosh Hashanah will haunt me even more than usual this year: ‘On Rosh Hashanah it is written, on Yom Kippur it is sealed, who shall live and who shall die.’ ”

Idan’s full Hebrew name is Idan Yarden ben Esther. You can donate to his medical fund by visiting www.youcaring.com/medical-fundraiser/help-fight-for-idan/63532.

About the Author:


If you don't see your comment after publishing it, refresh the page.

Our comments section is intended for meaningful responses and debates in a civilized manner. We ask that you respect the fact that we are a religious Jewish website and avoid inappropriate language at all cost.

If you promote any foreign religions, gods or messiahs, lies about Israel, anti-Semitism, or advocate violence (except against terrorists), your permission to comment may be revoked.

4 Responses to “Jewish Baby With Rare Disease Needs Bone Marrow Transplant”

  1. The parents need to read http://booklocker.com/books/3067.html which lists worldwide charitable organizations willing to pay an applicant's various medical costs. The book has been endorsed by a medical ethicist, rabanim, medical and mental health professionals. May Av HaRakhamaim Rofeh cholim heal Akiva.

  2. Raymond Austin says:

    if i could help,i would

  3. Tarek Saba says:

    Just kidnap a gentile and steal its parts! Zionist way of doing things. We are just a goy here to serve. Google it!

  4. SteveBernath says:

    Wish I could help, do you have a bone marrow doner?

Comments are closed.

SocialTwist Tell-a-Friend

Current Top Story
The Palestinian Authority has produced a brilliant piece of propaganda to sow more seeds of war.
Hamas Propaganda Video Compares 9/11 with IDF Bombing of Gaza
Latest Sections Stories
LBJ-082914

What better proof do we need than the recent war with Hamas in Gaza, dubbed “Operation Protective Edge,” that transformed the pain and suffering of three families into a sense of unparalleled unity and outpouring of love of the entire nation of Israel?

Katzman-082914

So many families are mourning, and all along we mourned with them.

Astaire-082914

In addition to his great erudition, Rabi Akiva was known for his optimism.

Kupfer-082914-Chuppah

She told me that she was busy and that he could sit in his wet clothes for the rest of the day. It would teach him to be more careful.

What can we do to help him stop feeling so sad all the time?

Children with dyslexia or dysgraphia frequently have problems in social relationships.

Israel’s neighbors engaged in hostilities from the onset. The War of Independence was a hard-won battle. Aggression and enmity has followed for 66 years.

The contest will include student-created sculpture, computer graphic design, collage, videography, PowerPoint and painting.

David, an 8-year-old boy on the autism spectrum, recently attended a Friendship Circle event. As he entered he told his Dad, “I love coming to the FC programs ‘cause everyone loves each other.”

Goldsmith himself went on his own “voyage of discovery” to the places where his grandfather and uncle landed and were sent.

Frank proclaimed himself Zvi’s successor and the reincarnation of King David.

You’re probably wondering why the greatest advocate of fast and easy preps in the kitchen is talking about layer cakes, right?

Almost immediately the audience began singing and clapping and continued almost without stop throughout the rest of the concert.

As of late, vintage has definitely been in vogue in the Orthodox community.

More Articles from Tova Ross
Idan Zablocki

Amanda and Akiva Zablocki, Jewish parents on Manhattan’s Upper West Side, are spending the month of Elul on the phone battling insurance companies. Their one-year old son, Idan (“era” in Hebrew), will soon be undergoing a bone marrow transplant for Hyper IgM, a rare genetic immune deficiency disorder that affects only two in a million people. The family’s Rosh Hashanah, Yom Kippur and Sukkot will take place at the Seattle Children’s Hospital as they prepare Idan for the surgery.

Earlier this year, the American Cancer Society came out with new guidelines concerning Pap smears, which screen for cervical cancer. Conventional wisdom had long held that women should receive annual Pap smears, but in March, doctors announced the new guidelines suggesting that women receive a Pap smear once every three years.

In his lifetime, he was a positive influence on so many, always inspiring others to be better while at the same time, working on his own character.

Gift-giving has become increasingly popular on the eve of Rosh Hashanah and the lead item is honey, not only those ubiquitous cute honey bear bottles, but more sophisticated and gourmet options.

Gift-giving has become increasingly popular on the eve of Rosh Hashanah and the lead item is honey, not only those ubiquitous cute honey bear bottles, but more sophisticated and gourmet options.

It is a testament to the authenticity and devotion of the staff at Our Place – a group of drop-in centers in Flatbush that cater to what most people would simply term “at-risk” teens – that none of them wanted to be mentioned by name in this article. In fact, the majority of them were even cautious about speaking with a reporter, so protective are they of their children, whom they consider very nearly their own.

Educational degrees in both teaching and administration abound. But when it comes to managing schools, few universities offer courses devoted to helping school principals and other administrators learn the management skills necessary to successfully run a school – specifically, a Jewish school.

When one thinks of kapotes, the traditional long suit jackets worn by married Lubavitcher chassidim, one doesn’t automatically think of the cutting edge of fashion. Yet Mendy Sacho, a 25-year-old Lubavitch tailor in Toronto, Canada, is pushing the garb into the spotlight.

Printed from: http://www.jewishpress.com/sections/features/jewish-baby-with-rare-disease-needs-bone-marrow-transplant/2013/08/21/

Scan this QR code to visit this page online: