(Names and situation changed as requested)
No matter how close people get to sample the life of those living with chronic illness, it is only a sampling. Opinions don’t change easily and righteous indignation often remains unchallenged. Well spouses and their families must live in a manner that makes sense for them without waiting for or relying on approval from those around them. Wishing people had a taste of what we go through in order to help them understand our life doesn’t change opinions and sometimes just makes them feel they are more justified in how they feel we should act. Even when our life is sampled, the experience is not enough for people to understand that our life is more than a sample – it is forever.
You can reach me at firstname.lastname@example.org.
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