To mark IDC Herzliya’s 20th anniversary, we spent a day following Prof. Uriel Reichman, IDC’s founder and president, and Jonathan Davis, VP for External Relations, around its delightful campus.
Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection. While Ezra still runs and plays like other toddlers, he must get IV Immunoglobulin treatments every few weeks, take prophylactic antibiotics, and use extra caution against germs in public places. Despite these treatments and precautions, serious complications still arise. The only cure for Ezra is a stem cell or bone marrow transplant.
Robin and Evan Fineman, Ezra’s parents, have been working with the bone marrow registry, Gift of Life, since October 2010 in their quest to find Ezra’s bone marrow donor. Gift of Life, headquartered in Boca Raton, Florida, is headed by founder Jay Feinberg, who recently celebrated the 16th anniversary of his own bone marrow transplant. Gift of Life focuses on patients in the Jewish community, as it would be more likely for them to find a match within the Jewish population. The search for Ezra’s match has gone global, with donor drives being held across the United States from Phoenix to New York, as well as Bialystok and Warsaw in Poland. The cost to process each potential donor’s sample, taken by a simple swab of the cheek, is $54. While each potential donor is encouraged to fund their own test, many people can’t afford to, and over 13,000 samples are still waiting to be tested due to lack of funding. While financial donations to Gift of Life are encouraged, the Finemans – who have raised over $100,000 for testing – are also trying to target their drives as much as possible to increase the chance of finding Ezra’s match.
Feinberg has personally been analyzing test results to see if they are on the right track. “Ezra’s DNA has an anomaly, a rare genetic crossover, that is making his search especially challenging,” says Feinberg. His antigens or markers are matching most closely with people of Eastern European descent, particularly those of Polish and Hungarian ancestry. “Robin has been working with a genealogist to discover Ezra’s ancestors’ cities of origin. The Holocaust has a huge impact until this very day on patients like Ezra. We are missing all of the bloodlines of people that would have been here today to donate,” explains Feinberg.
“It was amazing that over 200 people showed up for the drive in Bialystok,” Robin said. “With the language barrier, we weren’t even sure it was going to happen.” The Finemans, while still waiting for Ezra’s donor, are thrilled that nine potential donors for other patients have been found, and that one transplant has been performed so far through efforts on Ezra’s behalf.
Joining the bone marrow registry and donating is actually easier today than when Jay Feinberg was looking for his perfect match. For more information about having a drive in your area, contact Robin Fineman at Help4Ezra@gmail.com, or go to www.giftoflife.org/help4ezra, to order or sponsor a test kit. You can also visit Help4Ezra on Facebook. The actual donation procedure is much less invasive than it used to be.
Feinberg stresses the importance of all eligible participants joining the registry. “People ask, ‘what are the chances that I’ll be a match?’ but that can’t be further from the truth. They can be the one.” Feinberg should know, as 50,000 people were tested during his search for a donor. His perfect match was the 50,000th person to register at the very last drive to be held on his behalf.
Ezra needs to find his miracle match. Is it you?
About the Author:
If you don't see your comment after publishing it, refresh the page.
Comments are closed.
Divorce from a vindictive, cruel spouse can be a lifelong nightmare when there are offspring.
There were many French Jews who jumped at the chance to shed their ancient identity and assimilate.
As Rabbi Shemtov stood on the stage and looked out at the attendees, he told them that “Rather than take photos with your cellphones, take a mental photo and keep this Shabbat in your mind and take it with you throughout your life.”
Yeshiva v’Kollel Bais Moshe Chaim will be holding a grand celebration on the occasion of the institution’s 40th anniversary on Sunday evening, December 7. Alumni, students, friends and faculty of the yeshiva, also known as Talmudic University of Florida, will celebrate the achievement and vision of its founders and the spiritual guidance of its educational […]
The yeshiva night accommodates all levels of Jewish education.
Recently, Fort Lauderdale has been the focus of international news, and it has not been about the wonderful weather.
Rabbi Sacks held the position of chief rabbi of the United Hebrew Congregations of the Commonwealth for 22 years until September 2013.
The event included a dvar Torah by student Pesach Bixon, an overview of courses, information about student life and a student panel that answered frequently asked questions from a student perspective.
It is difficult to write about such a holy person, for I fear I will not accurately portray his greatness…
“Grandpa,” I wondered, as the swing began to slow down, “why are there numbers on your arm?”
So the real question is, “How can we, as hosts, make sure our guest beds are comfortable?” Because your guests will never say anything.
It was a land of opportunity, a place where someone who wasn’t afraid of a little hard work, or the challenges of adapting to a different climate and culture, could prosper.
Rule #1: A wife should never accompany her husband to hang out with his buddies at a fantasy football draft. Unless beer and cigars are her thing, that is.
There are many people today with very little training who put out shingles and proclaim themselves to be marital coaches, shalom bayis helpers, advisers etc.
More often in recent years, people are gluten-intolerant or are choosing to eat a gluten-free diet. This may feel like a challenge to a hostess, but if you know in advance there are some simple ways to accommodate your guests’ special needs.
A Jewish educator anywhere in the world can now seek the accumulated knowledge available at the The Azrieli Graduate School of Jewish Education and Administration. With the introduction this spring of a degree that can be completed online, geography is no longer a bar to attendance in an Azrieli Master’s program.
Having twins used to be a novelty. Now, if you think that you are seeing double everywhere you go, it is not your imagination. The National Center for Health Statistics (NCHS), under the auspices of the Centers for Disease Control and Prevention (CDC), published a study last month noting the sharp increase in twin births over the past three decades.
Deliberating over terminating a pregnancy is a struggle Rachel* never thought would face her. Life in Northern Israel with her husband and daughter was great until a business they invested in brought a huge financial loss and left them in debt.
Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection.
Ohel is well known in the New York area for the foster care programming it has been providing for over 40 years, along with its mental health services to individuals and families, and its services to the developmentally disabled through its Bais Ezra programs. Ohel also provides substantial training to professionals, and workshops and seminars to the community at large.
Printed from: http://www.jewishpress.com/sections/magazine/potpourri/looking-for-the-perfect-match/2011/08/17/
Scan this QR code to visit this page online: