In Israel, a new five month scholarship program being offered to young aspiring athletes – one of them could be you.
Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection. While Ezra still runs and plays like other toddlers, he must get IV Immunoglobulin treatments every few weeks, take prophylactic antibiotics, and use extra caution against germs in public places. Despite these treatments and precautions, serious complications still arise. The only cure for Ezra is a stem cell or bone marrow transplant.
Robin and Evan Fineman, Ezra’s parents, have been working with the bone marrow registry, Gift of Life, since October 2010 in their quest to find Ezra’s bone marrow donor. Gift of Life, headquartered in Boca Raton, Florida, is headed by founder Jay Feinberg, who recently celebrated the 16th anniversary of his own bone marrow transplant. Gift of Life focuses on patients in the Jewish community, as it would be more likely for them to find a match within the Jewish population. The search for Ezra’s match has gone global, with donor drives being held across the United States from Phoenix to New York, as well as Bialystok and Warsaw in Poland. The cost to process each potential donor’s sample, taken by a simple swab of the cheek, is $54. While each potential donor is encouraged to fund their own test, many people can’t afford to, and over 13,000 samples are still waiting to be tested due to lack of funding. While financial donations to Gift of Life are encouraged, the Finemans – who have raised over $100,000 for testing – are also trying to target their drives as much as possible to increase the chance of finding Ezra’s match.
Feinberg has personally been analyzing test results to see if they are on the right track. “Ezra’s DNA has an anomaly, a rare genetic crossover, that is making his search especially challenging,” says Feinberg. His antigens or markers are matching most closely with people of Eastern European descent, particularly those of Polish and Hungarian ancestry. “Robin has been working with a genealogist to discover Ezra’s ancestors’ cities of origin. The Holocaust has a huge impact until this very day on patients like Ezra. We are missing all of the bloodlines of people that would have been here today to donate,” explains Feinberg.
“It was amazing that over 200 people showed up for the drive in Bialystok,” Robin said. “With the language barrier, we weren’t even sure it was going to happen.” The Finemans, while still waiting for Ezra’s donor, are thrilled that nine potential donors for other patients have been found, and that one transplant has been performed so far through efforts on Ezra’s behalf.
Joining the bone marrow registry and donating is actually easier today than when Jay Feinberg was looking for his perfect match. For more information about having a drive in your area, contact Robin Fineman at Help4Ezra@gmail.com, or go to www.giftoflife.org/help4ezra, to order or sponsor a test kit. You can also visit Help4Ezra on Facebook. The actual donation procedure is much less invasive than it used to be.
Feinberg stresses the importance of all eligible participants joining the registry. “People ask, ‘what are the chances that I’ll be a match?’ but that can’t be further from the truth. They can be the one.” Feinberg should know, as 50,000 people were tested during his search for a donor. His perfect match was the 50,000th person to register at the very last drive to be held on his behalf.
Ezra needs to find his miracle match. Is it you?
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Leah Katz, a TeenZone camper at Oorah’s TheZone summer camp and an 11th grader at Midwood High School, read her winning essay about how TheZone changed her views on Judaism at the Jewish Heritage Awards Ceremony held at Brooklyn District Attorney Charles Hynes’s office in April. The purpose of the Jewish Heritage Essay Contest is to acquaint public school students with Jewish history and customs and to help foster a deeper understanding of Jewish culture. The contest is open to students of all ethnic and religious backgrounds. Leah’s essay is reproduced in full below.
Moshe Sharett, the head of the Jewish Agency’s Political Department, visited Egypt in 1945. In Cairo he met a most remarkable young woman, a beautiful journalist who was the darling of Egyptian high society – from high-ranking military brass, to culture icons and Muslim sheikhs, to the court of King Faruk.
The two proceeded to talk about everyday things and surprisingly her mother-in-law did not find anything else to criticize. This occurred a few more times, with my client changing the topic every time by complimenting her mother-in-law or mentioning something positive about her.
There is always a lot of confusion surrounding sensory processing disorder – mainly because there are many different diagnoses that fall under the catch-all phrase sensory processing disorder (SPD). Among them are three specific subcategories:
The doctor had warned us that even if we did everything right and followed the protocol after the follicle was of the right size, there was no guarantee of success. Fertilization still had to occur, and just like couples do not necessarily become pregnant every month, we had no way to know if we were actually expecting for two full weeks.
The next chapter of the award-winning novel.
Jewish Press columnist Rebbetzin Esther Jungreis, founder and president of Hineni, the international Torah outreach organization, recently addressed an overflowing audience at the Beth Jacob Congregation of Irvine in southern California. Rebbetzin Jungreis’s address theme, “Making a Good Relationship Magical,” was apropos for the evening’s main mission: raising funds for the Irvine community’s mikveh.
You have probably been planning your marriage since you were about three. Let’s fast-forward to a big milestone– your twenty-fifth wedding anniversary. (Don’t worry, you don’t look a day over twenty one!) Now, would you appreciate your husband buying you a dozen roses that some florist recommended?
As I mentioned in my earlier articles about our family trip to Israel, our night flight went pretty smooth, thanks to my children’s willingness to sleep throughout the flight. I, on the other hand, didn’t sleep a wink and I wasn’t feeling too great by the time we landed. But we were finally in Israel, and just being in the beautifully renovated Ben Gurion airport and hearing all the Hebrew around us was exciting enough.
While all the flowers that grace your Shavuos table will surely be a delight to your eye, these will be a delight for your palette as well. Create them at any level, simple or sophisticated; any way you make them they’re sure to be a sensation.
Welcome back to “You’re Asking Me?” where we attempt to answer questions sent in by people who fortunately have fake names, so they won’t be embarrassed. I don’t know how they got through school, though.
Speechless wonder is the reaction to the beautiful vision seen though the Arch of the Keshet Cave at the Adamit Park in the Galilee. One of the most amazing natural wonders in Eretz Yisrael, the Me’arat Hakeshet — also known as the Rainbow Cave or Arch Cave — can be found up against the Israel-Lebanon border just a few kilometers from Rosh Hanikra and the sparkling blue Mediterranean Sea. It is situated amid the wild scenery on the cliffs of Nachal Betzet and Nachal Namer, on the Adamit Ridge.
A Jewish educator anywhere in the world can now seek the accumulated knowledge available at the The Azrieli Graduate School of Jewish Education and Administration. With the introduction this spring of a degree that can be completed online, geography is no longer a bar to attendance in an Azrieli Master’s program.
Having twins used to be a novelty. Now, if you think that you are seeing double everywhere you go, it is not your imagination. The National Center for Health Statistics (NCHS), under the auspices of the Centers for Disease Control and Prevention (CDC), published a study last month noting the sharp increase in twin births over the past three decades.
Deliberating over terminating a pregnancy is a struggle Rachel* never thought would face her. Life in Northern Israel with her husband and daughter was great until a business they invested in brought a huge financial loss and left them in debt.
Fair Lawn, New Jersey’s Ezra Fineman is looking for his perfect match. He is smart, has brown hair, and a great smile. Ezra is also two years old and is looking for a bone marrow donor. After contracting a severe case of pneumonia at five months old, Ezra was diagnosed with Hyper IgM syndrome, a rare primary immune deficiency. Affecting only one in every one-two million people, the syndrome keeps his body from producing antibodies, leaving him with a heightened susceptibility to infection.
Ohel is well known in the New York area for the foster care programming it has been providing for over 40 years, along with its mental health services to individuals and families, and its services to the developmentally disabled through its Bais Ezra programs. Ohel also provides substantial training to professionals, and workshops and seminars to the community at large.
Printed from: http://www.jewishpress.com/sections/magazine/potpourri/looking-for-the-perfect-match/2011/08/17/
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